May 2013
7 posts
4 tags
What to take tonight
Alas, the Migraine cafe is open
We’ve got triptans, green, white, and a spray
Or lidocaine, muscle relaxers, emetics, or some painkillers might do
It’s a menu of options I don’t want to try
but it’s time to choose, as opens the sky.
Welcome to the checkout lane of the Migraine cafe.
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Apologies...
I’ve been getting my other blog http://bopiseverywhere.tumblr.com up and running. Since this allergy to a stupid root- used in so many products, (as “fragrance”, or masking fragrance to make things not stink- like in meds…) and without a listing published ANYWHERE of all of its appearances in daily life, and it’s been playing such a huge role in my life as I try to...
4 tags
THIS IS WATER- But most days if you're aware... →
Speech given by David Foster Wallace to Kenyon College’s 2005 graduating class.
There are these two young fish swimming along And they happen to meet an older fish swimming the other way
Who nods at them and says morning boys how’s the water?
And the two young fish swim on for a bit and eventually
One of them looks over at the other and goes
What the hell is water?
The point of the...
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One day, I looked in the mirror, part deux
Last year, during HAWMC, my friend’s fiancee was diagnosed with cancer. My post for that day made no sense in the light of the prompt.
And this weekend, we drive to their wedding; I hadn’t met her hat the time, but I knew that she had to be special if he was marrying her. She is. I met her earlier at another of that clique’s wedding. Great sense of humor, and even with the end...
April 2013
35 posts
5 tags
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HAWMC day 30- I made it (sorta)
Prompt:Describe your HAWMC experience in one word!
“Aprillicious.”
April is the worst month for my Migraines. So, the fact that i got this many posts off is kind of a testament to my drive to get this done.
I’ve once again learned that it’s okay to take care of me. But even in my worst month, I did well.
It felt good to write when the highs of lack of pain and the...
Spoonie Tumblr Map - Google Maps →
Find spoonies from around the world.
Spoonie Tumblr Map directions
http://goo.gl/maps/T4bv0
click edit
play around with zoom to find your location on the map
click the peg(between the hand and squiggly line)
click your location and add you name/tumblr name and whatever you want to add
then click ok and you’re done
if you still need help or need clearer instructions let me know. I can also add...
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HAWMC day 29- Congratulations:
Prompt: We all know Health Activists are awesome. Share three things you love about yourself, things you’re great at, or just want to share. Don’t undercut or signpost!
Ugggh. I think I’d rather write an essay about the life of a dung beetle.
1) I’m a former music minor. (vocal performance)
I’m a pretty great sight-reader, I am a soprano (shh, don’t tell…),...
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HAWMC- Wordless Weds (from the 24th)
Create a Pinterest board for your health focus. Pin 3 things. Share the image.
I already have a pinterest board for my health focus. Instead, I’ll share things I’ve already pinned to that board….
Source: instagram.com via Jamie on Pinterest
Teri Robert’s Wonderful book
Source: somebodyhealme.dianalee.net via Jamie on Pinterest
Source: image.improve.com via Jamie...
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HAWMC day 28- Must follow:
Follow your heart.
I also agree with Emily over at This Post at the M- Word. We all are searching for something different-
information
support
caring
But don’t follow internet spammers, those who claim to have a cure… or are just jerks, messing with others in the community. (if you don’t know who they are right now… You’ll find them- and don’t bother...
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HAWMC DAY 21- ADVERSITY
Prompt: “The flower that blooms in adversity is the rarest and most beautiful of all.” – Mulan True or false? When do you bloom best?
I bloom as an advocate when I get really ticked off. I write, I take action, I do something about my emotions and pour them into constructive things.
As a person, I think I bloom in various ways. Some might say that I’m best when pushed and taken advantage...
HAWMC day 26- a pain free day
I needed more than one this week. While I’m feeling better today, I feel like I missed a week of my life.
I’m several days behind on here, I missed a doctor’s appointment. (bad jamie)
Spent several days on the couch.
when you feel you have lost everything, you still...
dearscience:
books
unexpected kindness in strangers
the rest of the world to travel
languages to learn
animals to take care of
volunteer work to do
the power of a good night’s rest
the changing of seasons
infinite things to learn
billions of people to meet and possibly love
billions of people who might love you back
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HAWMC Day 27- My Biography
Five working titles:
1. Get me off this roller coaster
2. There’s got to be a lesson in this somewhere- and finding it.
3. Pharmanerd- learning about retail pharmacy without the student debt
4. Many tales of a left-leaning computer dork
5. I still have my sense of humor, and you can’t take THAT from me.
I just lost a post
That I had been working on for 2 hrs.
And saved.
And saved wrong.
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What happened?
writhing in pain
fingers
migraine
New conditioner. I wanted a shower to take away the migraine
i start to cry.
can barely see
and i wait for him to come home to help…
for i can barely see
even to take rescue meds
for which pain
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HAWMC Day 18- "I don't take it back:" My Real...
Yes, I know, this does not follow the prompt.
but why do we have to “forgive and forget always?” does that mean that we’re good little health activists, or good little chronically ill folks. I never said this out loud, but I’ve thought it many a time. And thus, I must change the prompt, and air my thoughts. Because we all know that storing up negative emotions can’t be healthy.
And thus, what...
4 tags
HAWMC- Misinformation: The three truths and a lie...
Here were the choices from the original post over here
1. I can’t tolerate Imitrex, and almost wound up in the hospital from a dose given to me in a doctor’s office.
True
2. I often experience aphasia with my Migraine attacks, and wish that my partner and I could communicate with sign language.
True
3. I’m phonophobic during a Migraine attack, but not photophobic.
False I’m...
2 tags
HAWMC day 16- Misinformation
Tell us 3 things that are true about you, your condition, or your Health Activism. Tell us 1 lie. Will we be able to tell the difference?
1. I can’t tolerate Imitrex, and almost wound up in the hospital from a dose given to me in a doctor’s office.
2. I often experience aphasia with my Migraine attacks, and wish that my partner and I could communicate with sign language.
3....
Day 4: Sharing Resources Care page for migraines... →
thelamedame:
myth1977:
Create a “care page”
–
a list of your best resources that someone who is newly diagnosed could
go to when starting to advocate for themselves or a loved one. Remember to include sites that
lead to successful self advocacy! Keep in mind on the far right under the column ‘Those in pain raise your hand’ is a list of fellow migraine or fibromyalgia bloggers you can...
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HAWMC day 14- Y'all rule
Teri Robert= @TRobert - where would the Migraine community be without you?
Ellen- @eschnak = your feisty warm determination makes me want to do more, to kick some more butt, to be a better person.
Diana- @somebodyhealme A jack of all trades, and a winner with all. Your blog is great, and Migraine chat is a godsend.
Emily- @emilymword- thanks for the laughs, the tears, the stories, the...
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HAWMC- MIGRAINE ACROSTIC #2- DAY 13
My head is still filled with fuzz It’s not like a hangover, I can’t explain the feeling though. Gastroparesis remains with my body- it won’t leave yet. Reglan makes me go absolutely bonkers, so I’m stuck with this Awful feeling until I come back fully, and the postdrome passes. Normal emotions return and mood swings pass. Ending this episode of sheer horror.
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HAWMC Day 13 Migraine Acrostic Poem:
My eyes roll.
I’ve been
Given another
Rotten
Article that
I have to debunk, while at the the same time,
Never wanting to
Embarrass my so-called “Miracle Cure”helper
Dentistry from the Heart- Raleigh, NC- April 13
“Dentistry From the Heart” tomorrow 7am-5pm: free dental care for those in need #Solidarity #HealthCare #Raleigh #ows twitter.com/StrikeDebtRal/…— Strike Debt Raleigh (@StrikeDebtRal) April 13, 2013
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HAWMC Day 12- A letter to a newly diagnosed Jamie.
Dear Jamie,
I’m writing this to you on the day of your diagnosis.
You’re allergic to Balsam of Peru (BoP). Yes, no one’s ever heard of it.
CRAP. Oh, did I say crap? There are a lot more four letter words I’d like to use, but for now, we’ll say “crud.” Yes, BoP is in all fragrances…
And in Shampoos. You’ll try out some shampoos. Um-...
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HAWMC day 8- my animal
Prompt:If your health condition was an animal, what would it be? Is it a real animal or make believe?
It’s real. And here it is…the King Cobra!
. (Photo Credit: Hectonius, under Creative Commons Attribution-ShareAlike 3.0 Unported
Ok: So- why?
It also has Occipital issues. In it’s case, “A foolproof method of identification is if on the head, clearly visible,...
“I won’t ever tell you that your migraine isn’t real, doesn’t hurt as bad as you...”
– Stephanie Magan - Migraine Wife/Advocate/Sufferer (via holymigrainemony)
1 tag
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HAWMC DAY 7- Sensationalize!
Prompt: Say WHAT!? What’s the most ridiculous thing you’ve heard about health or your condition? Where did you hear it and what did you think?
Can’t pick just one. And you know what, I’m kinda peeved that this is a topic here, as I spend so much time debunking them, that to set me up to go find a headline or news article, or to think about someone’s ignorance…...
3 tags
HAWMC DAT 6- A Letter to my Migraines:
“I say the same thing twice, sound awkward when I speak.”
Prompt:Write a letter to your condition – what do you want to get off your chest?
Dear Migraine Disease:
First of all, I don’t hate you. I loathe you Every night I spend in pain, every day the lights are too bright.
The miles (literally) I’ve travelled to loosen your grip over my life
The money you drain...
5 tags
HAWMC- DAY 5 Activism
April 12, 2020, Chapel Hill, NC: All products with fragrances (yes, even masking fragrances, devised to take the awful smell out of things) must be labeled as such due to the perseverance of allergy activists. “It was miserable when I was diagnosed,” said Jamie, a blogger, and former sufferer of severe allergy to Balsam of peru- a substance found in “fragrance.”
She...
2 tags
HAWMC: Day 4- Lists, Lists:
Places to go for the newly diagnosed, or others:
The American Headache and Migraine Association (AHMA)
The AHMA exists to EASE the burden of Migraine and other headache disorders through Education, Awareness, Support, and Engagement.
The Health Central Migraine Forums Meet people, ask questions, learn from experts… it’s all there (with links to other parts of the site for more...
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HAWMC day 1- Why do I write about my health...
Prompt: Why HAWMC? This is our third year of the Health Activist Writer’s Month Challenge – why did you get involved this year? Are you a newbie to #HAWMC or a veteran?
This is my second or third year taking part in HAWMC, and each year, I’ve done so with variations on a theme. I’m looking for community, for others to say “me too.” Or to be that person that puts out an idea that another takes...
March 2013
5 posts
3 tags
Mourning a diagnosis I don't have.
It’s the strangest feeling. I should be elated… but I’m not. I was comfortable in my own skin, having adopted a diagnosis, gone through the stages of mourning about that, gone through the stages of grief- and finally realized that this was something I was going to live with my whole life.
And suddenly, that whole period of mental mechanics, going through the grief process was...
What exactly does one study in the Exploration... →
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February 2013
7 posts
1 tag
“A University of North Carolina at Chapel Hill sophomore says she feels like she...”
– UNC student who says she was raped facing honor code violation
1 tag
