Note: this is going to be very stream of conscious. I’m not thrilled by the post. I don’t want it to be impossible.
Close my eyes in bed
can’t sleep a wink
shouldn’t have slept all day
but the pain was over the brink
so, paininsomnia wins again
and the next day, i’ll be cranky
i should accept it by now
but i don’t want to.
Because I don’t think I’m alone in this
And we all live in a messed up upside down world where day and night may swap.
As I finish this at 11pm.
Having only gotten up 4 hours before.
Now, when do I try and sleep tonight?
June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by FightingHeadacheDisorders.com
“self- care”
Day 17 of the Migraine & Headache Awareness Month photo challenge
Prompt:
Have you found a way to work exercise or movement into your life with
Migraine/Headache Disorder? What is it?
Yep.
I live on the third floor of an apartment building with no elevator. ‘nuff said.
I spend about 10 minutes each day finding my keys, wallet and cell phone. This involves (gasp) minor cleaning, looking to see where the cats might have knocked the keys, looking for yesterday’s jeans, etc…
i need to put some work in on my unicycle before i can ride, but that’s pretty nice exercise, plus I get the pleasure of open mouthed observers looking at me with awe. Nice feeling.
June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by http://www.fightingheadachedisorders.com/
Prompt: “distraction”
Day 16 of the Migraine & Headache Awareness Month (MHAM)
Technology- day 15 of the #migraine and #headache awareness month photo challenge
Prompt: Write & name a spell for getting rid of a Migraine/Headache attack.
“Migooonenow”
Ends a Migraine attack within 20 seconds without medication.
June 2013, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The 2013 Migraine and Headache Awareness Month Blog Challenge is a project of FightingHeadacheDisorders.com.
Crud. I could write so many letters… I’m lucky in that I have an amazing husband, spectacular parents, wonderful doctors, and great friends. So, this letter is addressed to someone who made me stronger. Someone who made me realize that I’d have to be a self advocate. Someone whose actions made me stand up for myself. And she didn’t intend to do that.
source:http://files.myopera.com/lambchop777/blog/aanm.evil%20doctor.jpg
this letter is dedicated to the doctor in this post Ignorant and dangerous physician, which was written for last year’s Migraine and headache awareness month.
I think it’s still appropriate, as awareness of Migraine disease doesn’t stop for those living with it, obviously, and for a doctor to show such complete ignorance is appalling to me.
I have to thank her, though. Without her actions that night, I never would have gotten involved seriously in the Migraine community. Never become an activist. Never become as strong as I am now.
I want to thank her ignorance for eventually (ironically) creating a safe environment at that same clinic for Migraineurs.
From another post- where I learned of that fact.I return to the scene…
She looks at my meds. (OY. Here we go again. All of my muscles tense up.) I quickly say “a lot of them are PRN.” She nods, and says something like “I kind of figured that when a few of them were triptans- including frova and amerge.” (My turn to blink.)
I had to. “You know about Migraine Meds- and triptans?” (I figure that she has a friend/cousin/someone) with Migraine disease.)
She nods. “There was an incident around here some years ago with a person with Migraines and now all of us have to know something about them and the basics of treatment.” (I paraphrase, ‘cause I almost didn’t hear past the first part of the sentence, as my head drowned her out with a ‘That was me. That was me, that was me that was me.’” I smiled. I know I did. Although, my heart was beating rapidly, and my head doing cartwheels, singing disney songs.)
It felt like I had a superhero cape on that no one could see. The incident…. Yes. It was much more than an incident. I knew it was my experience and tenacity that had created the change.That feeling of having genuinely done something that would make a difference in other people’s lives was elating. I knew I couldn’t stop, couldn’t stay quiet.
I had advocated for other causes before, and just like with doctor ignorant, something had to happen to make me feel passionate about creating change. To come out of the closet. To speak my mind.
So, I thank you, Doctor Ignorant. The Migraine community has one more safe space. And I’m never going to be silent again- I can’t. We all need each other to raise awareness, to speak out for those who can’t for some reason or another.
Love,
Jamie
June, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The Migraine and Headache Awareness Month Blog Challenge is issued by
FightingHeadacheDisorders.com
Prompt: What are the toughest treatment choices you face when balancing Migraine/Headache Disorders with other health conditions?
I have allergies to Balsam of Peru (think fragrances- all), and Polyethylene Glycol (sp) otherwise known as PEG. Well, Migraine frequently causes gastric slowing for me, and if it’s a long migraine, (TMI?), constipation.
Right now, I have to find something prescription for this problem. I can’t just go OTC, as the Miralax (which used to be my best friend) has PEG in it, and my fingers start to tingle from even internal contact.
And then if you want to go the other way, I’m trying to get rid of allergic contact dermatitis, but can’t do a bunch of the “standard” treatments, as it messes up my head. Either topical steroids, salicylic acid, etc.
So, it’s really a choice. Which will hurt more- my hands, or my head?
There are copious examples of this in my life… Caffeine= good for my dysthymia. Probably not great for Migraine. But not bad, as long as it’s in moderation.
I wish everything could be in moderation. But too often, I’m forced to pick one thing over another.
Gabitril, my head saver. But, do we talk about your side effects that may force me to leave you behind?
benzos- not the happiest of drugs for the body or brain…Benzos- only sleep aides ever to work.
And more and more. As I grow older, I put my life on the invisible scales- balancing pros and cons- and I find that if I keep talking it out, writing about it, and at worst, reversing bad decisions- for the most part, it’s not really Jamie- starring in her own heart-string-tugging movie.
June 2013, Migraine and Headache Awareness Month, is dedicated to Unmasking the Mystery of Chronic Headache Disorders. The 2013 Migraine and Headache Awareness Month Blog Challenge is a project of FightingHeadacheDisorders.com
“unmasked”
Day 13 of the MIGRAINE & HEADACHE AWARENESS MONTH 2013
PHOTO CHALLENGE
Sad: In memory of a young woman who very recently lost her battle with #ChronicMigraine. Melissa’s family will lay her to rest tomorrow. #mhampc #mham13 #migraine
